Life is Worth Living

Update From Rochester

I want to begin by soberly thanking every one of you who has offered a prayer or a sacrifice for Paul and our family.  Again we are deeply thankful for all the kind words, meals, money, and most especially, the prayers and sacrifices.  God works in mysterious ways, and please know that we feel His love through you all.

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Unfortunately after another shunt revision surgery last Friday, Paul is still hurting.  His head is aching, in an ebb and flow manner, and he isn’t eating well.

Because we were able to secure a house within walking distance of the hospital, however, Paul was allowed to join us.  This has been a great blessing for our family.  It cheers him to be around all his brothers and sisters.

Yesterday we took the whole family and attended a Latin Mass at the shrine in La Crosse, WI, dedicated to Our Lady of Guadalupe.  During his brief homily the priest paused and said quietly, “One of two things happen, when one begins to pray the rosary every day.  He either quits sinning, or he quits praying the rosary.”

Put so starkly, those words gave me great hope.

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Interior of the Church

Incidentally, we were able to make this pilgrimage to the Shrine through the generosity of some friends.  But also, on a practical level, we were able to take Paul because the Shrine offers rides on a golf cart to those individuals who are unable to make the ten minute hike up the wooded hill to the church.  Our Lady was surely interceding for us!

We prayed for Paul, but also for a friend of ours suffering from cancer and for the Amazon Synod.  We lit a candle in this small chapel on the hillside:

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It was a beautiful day, even if our hearts were aching for our son.

Tomorrow Paul has more appointments, to determine what should or should not be done.  Every day we live in uncertainty as to whether he’ll get better or not.  It is agonizing.  But we continue to trust in God.  We want to be loyal to His will, no matter the cost.

Tomorrow is also Paul’s 11th birthday, which he of course shares with his twin brother, Michael.  (I wrote about their birth HERE.)

But today…today we thank God for his most lovely and fair mother.  Our Lady of the Rosary, pray for us!

 

Life is Worth Living

A Quick Note on Paul

Dear Readers,

Paul is unexpectedly back in the hospital.  (For those of you who are new, click HERE for more details and pictures.)

We are choked with grief, as we watch him suffer.  He’s been vomiting for two days now, as the doctors are deciding what to do.  As it is, they are going to tap his spinal shunt, to see if fluid will come out.  If no fluid comes out, then Paul will have another shunt revision surgery.  If fluid does come out, then that means the shunt system is “working,” but it’s not helping him.  In this case, he’ll have a cranial reconstruction surgery on Monday or Tuesday.  This is where they cut and peel back his skin from ear to ear, take apart his skull, and put it back together, allowing for more space.  (St. Jude, pray for us.)

In the meantime, his doctors will do everything they can to get him through the weekend.  They can go in, open up his cyst, and drain fluid to release pressure, but again, they won’t do the cranial reconstruction surgery until Monday or Tuesday because it requires more doctors and planning.  It is a complex surgery, to say the least.

We should know later tonight which surgery to expect.

This is very painful for all of us.  It’s heart-rending.

Just now, we’ve booked a house within walking distance of the hospital, and the children and I are leaving tomorrow morning to join my husband and Paul.  Our whole family will be together.

Please remember us in your prayers.

P.S.  A friend sent this to me.  I feel it in my heart.  Thank you, dear friend.