Motherhood & Parenting

Surrendering to God’s Will

We are home from Paul’s latest surgery–his sixteenth, I believe, in less than two years.

Waking up in post-op. Still groggy.

Lately Paul’s doctor has been attempting to find just the right valve for his spinal shunt to allow for a maximum flow of fluid to release from his brain without causing other problems elsewhere. It’s a tricky thing. You’ll remember that Paul’s initial problem is an arachnoid cyst that sits on top of his brain, under his skull. He has a second shunt embedded there that is no longer functioning and which they cannot remove without damaging his brain. This surgery, however, was for the spinal shunt. In particular, it was to replace the valve located in his side.

Oh, it’s complicated. So complicated in fact that Paul’s doctor knows of no other case anywhere that even comes close to Paul’s. And as it is, this is the last known valve to exist that we can try. In other words, we are desperately hoping that this will work. There’s nothing left.

We know of course that we’re in God’s hands, though. He has willed all of this suffering, and so we rest in His care. Now this is an easy thing to know, but less easy to feel, especially when Paul is suffering. Instead of crying about it–of which I’ve done plenty–there’s only one thing to do, however, and that’s to live! We trust in Jesus, no matter what happens.

Right now Paul is doing and feeling well, in spite of the dreaded swelling in his spine, but pray for us, dear Readers. Pray for Paul; pray for a miracle.

Swelling in his spine that doesn’t want to go away. It’s this swelling that causes the spinal catheter to slip out, resulting in ceaseless vomiting and/or worse.

Paul, showing the site of his recent surgery wherein his doctor is experimenting with the last known valve, which connects to the spinal catheter.

Happy to receive candy bouquets! Thank you grandma and grandpa!

4 thoughts on “Surrendering to God’s Will”

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