Life is Worth Living

A Quick Note on Paul

Dear Readers,

Paul is unexpectedly back in the hospital.  (For those of you who are new, click HERE for more details and pictures.)

We are choked with grief, as we watch him suffer.  He’s been vomiting for two days now, as the doctors are deciding what to do.  As it is, they are going to tap his spinal shunt, to see if fluid will come out.  If no fluid comes out, then Paul will have another shunt revision surgery.  If fluid does come out, then that means the shunt system is “working,” but it’s not helping him.  In this case, he’ll have a cranial reconstruction surgery on Monday or Tuesday.  This is where they cut and peel back his skin from ear to ear, take apart his skull, and put it back together, allowing for more space.  (St. Jude, pray for us.)

In the meantime, his doctors will do everything they can to get him through the weekend.  They can go in, open up his cyst, and drain fluid to release pressure, but again, they won’t do the cranial reconstruction surgery until Monday or Tuesday because it requires more doctors and planning.  It is a complex surgery, to say the least.

We should know later tonight which surgery to expect.

This is very painful for all of us.  It’s heart-rending.

Just now, we’ve booked a house within walking distance of the hospital, and the children and I are leaving tomorrow morning to join my husband and Paul.  Our whole family will be together.

Please remember us in your prayers.

P.S.  A friend sent this to me.  I feel it in my heart.  Thank you, dear friend.

 

5 thoughts on “A Quick Note on Paul”

    1. Thank you. Paul slept well last night and looks much better today. As of this morning, his head doesn’t hurt. Since we’re staying in a house only three blocks away, they may let him leave the hospital. We would then just do clinic visits. We’ll see. I hope to update the blog later tonight or tomorrow.

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